About Neuroblastoma

As many parents can attest to, misdiagnosis is commonly part of the Neuroblastoma diagnosis process given the variance in symptomology and the fact that it is not a disease most doctors see very much of in their clinical lifetimes (not to mention that one expert estimates that as many as 15 percent as all clinical diagnoses are incorrect).

In Cian’s case, he was diagnosed with an ear infection, Coxsackievirus (hand-foot-mouth disease), and as an abused child, all in a matter of four days. In our case, each doctor that saw Cian locked on to a diagnosis prematurely and selectively ignored contradictory data.

In talking to other Neuroblastoma parents, the following are conditions their children were misdiagnosed with, often times for several weeks or months prior to receiving the correct diagnosis and initiating treatment:

  • General Constipation
  • Juvenile Rheumatoid Arthritis
  • Septic Hip
  • Colic
  • Bone Cyst
  • General Virus
  • Toxic Synovitis
  • Lupus
  • Mononucleosis
  • “Growing Pains”
  • Parental Munchausen Syndrome
  • “Hysterical Parents”
  • Child Abuse

While misdiagnosis – or non-diagnosis – is not uncommon for any disease or individual, as everyone knows, with cancer, early detection is key.